Science Meets Culture: CENTOGENE Event on Rare Diseases
February 29 to 09:00 - 19:10
350 million people worldwide suffer from so-called rare diseases. Despite of the somewhat misleading name, these diseases are the opposite of rare.
With parallel events on Rare Disease Day 2020 in Lahore, Berlin, and Mexico City, CENTOGENE will set the start for a global initiative with the goal of bringing the meaning of rare diseases for patients and their relatives to attention and shedding a light on different perspectives: the new annual International Rare Disease Film Festival.
“Art is a universal global language that can visualize emotions and reach people of all cultures”, said Prof. Dr. Arndt Rolfs, founder and CEO of CENTOGENE. “Film in particular is ideally suited to encapsulating the complexity of the subject of rare diseases.”
Scientists and Biotech-experts will give an insight into groundbreaking therapy concepts, committed doctors, as well as affected people report on the daily challenges in handling rare diseases.
In the afternoon, the accompanying music and film festival with contributions from “rare talents” sharpens the senses for the individual paths of people who live with rare diseases.
The award-winning film makers David Sieveking and Elle Ralph are represented on the day, as well as Tom Neitzke, who will present his film about the life of affected people in Pakistan.
Musical highlights will be set by the exceptional percussionist Christoph Sietzen, the Marimba-Ensemble Wave Quartet, as well as the Austrian Jazz formation Shake Stew.